Rivera, Rachelle Anne.
2/9. Seventeen.
BVHS '15. SD, CA.
Instagram: rachellerivera


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Release the hounds!


Release the hounds!

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Parc Astérix by (JPC )

Parc Astérix by (JPC )

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Like I Can - Sam Smith

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Lord Alfred Tennyson (via feierwasduliebst)

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Minus the being open and acting older lol

Minus the being open and acting older lol

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Are you 100% over the last person you kissed?
Not even close :)

Are you currently looking forward to anything?
Tomorrow, Friday and Saturday especially :3

Ever receive a really long apology?

What were you doing at 7:45AM this morning?
Sleeping I think?

Do you put ketchup on top of your french fries or on the side?

I don’t eat my fries with ketchup lol

Who was the last person you talked to in person?
Aaron! Just left like 20 min ago hah

How many tattoos would you like to have?
In my imagination/dreams, probably like 2 at the most

Have you ever hung out with someone just to hang out?
Yeah! :)

Would you be mad if your best friend dated your crush?
Considering my crush is my boyfriend, I’d be pretty damn pissed haha

Do you wish you were somewhere else right now?
Well I wish I left with Aaron haha

What was the last thing you drank?

Do you laugh a lot?
Oh god

Do you have a dog?
In my dreams I do ):

Do you like orange juice?

Would you rather have big or small dogs?
I wish I could have one of each haha, but I probably prefer the little dogs more 

Have you ever slept in someone else’s bed?
Cousin sleepovers hehe

When was the last time you cried?
:/ last night

Do you like your first name?
Sometimes lol

Tell me about the shirt your wearing:
It’s the 2013-14 CSF shirt. It’s grey, the letters are dark blue and the symbol is gold/yellow

Have you ever glued your fingers together?
LOL yeah I thought I could withstand hot glue or something when I was little

What time did you go to bed last night?
Idk like 2 or something ._.

Do you wear glasses?
Yes, or contacts

Are you there for your friends?
Of course

Who is the boy you trust most?

Which girl do you trust the most?

Do you think you’re wasting your time on the person you like?
Not at all :)

What woke you up this morning?
I don’t remember lol, I think I just woke up on my own

Do you/have you ever liked/been in love with someone older than you?
Liked yes, in love no.

Did you enjoy your summer?
I’m pretty satisfied I think!

How’s your heart lately?
In general, happy!

Are you planning to go see a movie anytime soon?
Haha idk

Do you want your life to stay the way it is right now forever?
Probably most of it

Are you a jealous person?
Ooh girl. Yeah but I try not to be :/

Do you think “I love you” are strong words?
Of course dude

Are you ready to get out of this town?
To visit places sure! But not to leave.

Have you had alcohol in the last 48 hours?

Do you currently have a hickey?

Would you rather live without music or without the TV?
TV. But I’d probably still get bored a lot lol. But then again, maybe I’d be skinnier LOL

Are you one of those Jonas Brothers obsessed people?
Haha I used to be. (I feel like I’ve answered this question before :P)

When was the last time you went dancing while under the influence?
Uhm never lol

Are you one of those people who obsesses over Hollister?
No, I like it but it’s expensive

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"Smoke with me babe
and lay with me babe
and laugh with me babe
I just want the simple things”

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On May 28th, my sister, Edna, turned 31.


Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 


Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 


That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 


ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.


May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 


Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 


Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 


YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 


Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 


For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 


But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.


She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 


So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.


Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 


Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 


This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.


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